The Boy Whose Skin Fell Off

Sunday night we watched The Boy Whose Skin Fell Off, on TLC. This is a documentary that originally aired in England, I believe.

It is the story of Jonny Kennedy, a man who was born with a genetic skin condition called Epidermolysis Bullosa, which causes the skin to essentially blister and fall off at the slightest touch. Jonny was 36 years old at the time of his death, and agreed to do this documentary to help raise awareness of the condition and help get funding for research for its cure.

The documentary gives you a look at Jonny’s life and the constant pain he was in as a result of the condition. The most amazing thing about the documentary however, is the look at Jonny and the great outlook on life and wonderful sense of humor this guy had in the face of a horrible affliction.

The show was touching, as you watch Jonny prepare for his death after being diagnosed with skin cancer, apparently a pretty common outcome for people with EB.

The only complaint I have is the extreme amount of advertising that stations air during this type of show. It was completely out of control, I’m assuming due to the visibility of the show. Its sad that everything turns into an advertising blitz these days, especially since finding something that is actually worth watching on TV is such a chore these days.

Just a clue to the networks: a commercial break every five minutes is unnacceptable, m’kay?

Related Links

That Star Trek:TNG Kid has a blog …

So I’m sitting around last night watching VH1’s 100 Greatest Kid Stars, hosted by Christopher Knight.

One of the kids they brought up was Wil Wheaton, the kid from Star Trek : The Next Generation. As I’m watching the show, I hear him say something about his blog and make a mental note to check out his blog the next time I’m on-line.

Now, normally with mental notes, they last for about 3 minutes and are never found again and I never remember to look at what I thought I needed to look at. But when I woke up this morning the first thought I had as I went through the news was “… wait a minute, I have to check out that Star Trek guys blog”.

Wil, who used to play Wesley Crusher on Star Trek : The Next Generation, is now an actor, writer, blogger, and geek. His blog, wilweaton.net, is actually a pretty interesting read. He’s definitely got a sense of humor, as can be seen on his FAQ page. This blog just might become a regular read for me. It’s definitely gotten my curiosity up on his books, Dancing Barefoot and Just a Geek. I just might have to pick them up sometime.

Now one might ask, “What could I possibly get out of reading that guy from Star Treks blog”? Well, I found a reference to The Geek Code, apparently a sign of status in the geek community. Now I have one. Do you?

-----BEGIN GEEK CODE BLOCK-----
Version: 3.1
GIT d- s:-- a C++@ ULS+++@ P+++@ L+++>$ E@ W+++$>$ N+@ !o !K-- 
w+++@ O@ M !V-- PS+>$ !PE !Y+ PGP>$ t+>$ !5 X+++>$ !R- tv+++>$ 
b++>$ DI++ !D G>$ e? h--->$ r+++@ y+++
------END GEEK CODE BLOCK------

To decode the above code, copy it and paste it into the Geek Decoder.

The Adventures of Pete & Pete Season One Available on DVD

The Adventures of Pete & Pete - Season 1Finally, The Adventures of Pete & Pete – Season 1 has been released on DVD.

From 1993 – 1996, Nickelodeon aired this series about two brothers named Pete and their adventures in the town of Wellsville. This was the one show that Kelsi would watch when she was small that I looked forward to watching with her. It was the event of our weekends together on Sundays at 11:00a.

The episodes were funny, intelligent, and just fun to watch. A while back we found them on Noggin and began watching them again, wondering when they would finally be released to home video.

This show brings back a lot of great memories. Unfortunately, while Kelsi found them at the mall (we were shopping for eighth grade graduation clothes), we had to take her home before she got a chance to watch them with me this time around.

If you find these in the video store, grab them and give them a try. The show is a crack up and from my perspective probably one of the best situation comedies I’ve ever seen on TV. It also had one of the catchiest theme songs (“Hey Sandy” by Polaris) that I’ve ever heard, which can be found on the album Music From the Adventures of Pete & Pete.

Related Sites:

Intervention on A & E

Just when you thought they would be out of ideas for reality TV, the folks at A&E come up with a show like Intervention, which airs Sunday nights at 9pm Central time.

This show is as addicting as the gambling and drugs its participants are hooked on. Once you start, you can’t stop watching it.

The premise of the show is that the participants volunteer to do a documentary on addiction and the cameras follow them around as they talk about their behavior. The have no idea that the whole point is to get them into a room with their loved ones and push them into rehab.

The most disturbing episode thus far was episode 2, about a 31 year old man named Gabe who was a compulsive gambler. His view on life was that it was his parents “obligation” to pay his debts. These parents mortgaged their house to help pay his $500,000 gambling debts and the guy still wasn’t satisfied. The guy threw nothing short of temper tantrums every time he didn’t get his way. It was the most painful example of someone who refuses to take responsibility for his own actions that I had ever seen. You have to keep an eye out for reruns of this episode. It’s amazingly disturbing.

The only episode I’ve missed so far is the one on video game addiction. I’m keeping my eye out for that one.

Oh, big news. I’ve been asked to participate in a show documentary about blogging. I’ll let you know how that goes …

Quantum Leap – The Complete Third Season In Stores Now

Quantum Leap - The Complete Third Season Browsing through Suncoast Video yesterday, we found that Quantum Leap – The Complete Third Season has been released to DVD.

This show, during the time that it was on, was my absolute favorite on TV. The third season includes the two part “The Leap Home” episodes, where Sam leaps back into himself when he is 16 in part one to win a basketball game. During this time he tries to save his father and brother from dying.

The second part of the episode, Sam leaps into a member of his brothers squad in Viet Nam, where he tries to prevent Toms death on April 8, 1969.

These are the two episodes we got through last night. I’m hoping to keep chipping away at the set through the rest of the week.

We found the set quite a bit cheaper over at Wal-mart, so you might want to check there before hitting the usual channels (unless of course you want to click one of the links above and give me a cut of your purchase). 😉

Johnny Carson Dies at age 79

Johnny Carson passed away this morning at the age of 79.

I can’t tell you how much I used to look forward to The Tonight Show back when he was the host. As a matter of fact, I don’t think I’ve actually watched the show since May of 1992.

He was definitely a one of a kind and it was a sad day when he left television.

There is more information available at CNN.com, an article on E-Online and one more on msnbc.com.

Update:
CNN has Your Johnny Carson Memories, which is a pretty cool tribute. Some of the moments we all enjoyed are mentioned in this one.