It is the story of Jonny Kennedy, a man who was born with a genetic skin condition called Epidermolysis Bullosa, which causes the skin to essentially blister and fall off at the slightest touch. Jonny was 36 years old at the time of his death, and agreed to do this documentary to help raise awareness of the condition and help get funding for research for its cure.
The documentary gives you a look at Jonny’s life and the constant pain he was in as a result of the condition. The most amazing thing about the documentary however, is the look at Jonny and the great outlook on life and wonderful sense of humor this guy had in the face of a horrible affliction.
The show was touching, as you watch Jonny prepare for his death after being diagnosed with skin cancer, apparently a pretty common outcome for people with EB.
The only complaint I have is the extreme amount of advertising that stations air during this type of show. It was completely out of control, I’m assuming due to the visibility of the show. Its sad that everything turns into an advertising blitz these days, especially since finding something that is actually worth watching on TV is such a chore these days.
Just a clue to the networks: a commercial break every five minutes is unnacceptable, m’kay?